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TOPIC: Gong through a tough time...
#7770
Garbarino (User)
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Gong through a tough time... 17 Years, 6 Months ago  
My 4 year old daughter Elli Rose Garbarino was diagnosed with Leukemia on Friday April 4th. The type she has is called ALL, Acute Lymphocytic Leukemia and is very treatable/curable in children her age, up to 93% for full cure. Today is our first day back home with her after 9 days at UCSF Children's Hospital. She is being treated with chemotherapy and is already showing good progress. Her doctors say she is exactly where they would like to see her as far as improvement. Her blood test yesterday showed much lower leukemia cell counts and her body is producing healthy cells, all good news. I want to thank Charlie for talking about Camp Okizu here on the board because I remembered it and asked about it at the hospital. One of our nurses said she had volunteered there several times and got the paperwork for us to sign up for the family camp. We're keeping our fingers crossed and hope everything keeps going as good as it has so far.

Rich
 
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#7772
Charlie S (User)
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Re:Gong through a tough time... 17 Years, 6 Months ago  
If you have any questions feel free to call me. I'll PM you my number. Camp Okizu is a wonderful resource for not only the kids who can go to camp but for the parents and family of the child as well. The family camp will be of great benefit. Many fine folks on this board have contributed too much to list to help this camp.

You will be in our prayers and thoughts and like I said, call me if you need to. Charlie S, formerly UC
 
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#7774
JohnD (User)
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Re:Gong through a tough time... 17 Years, 6 Months ago  
Hey Rich,
Glad things are looking good for little Elli Rose. We had a bit of a scare earlier this year with our 2 year old daughter and I can't even say the L-word with out getting upset.
Thanks for reminding me about Camp Okizu, I've been looking for good charities since then and I'll be sure to add it to the list.
Hope things continue to go well for you all.

JohnD
 
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#7776
Phil (Admin)
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Re:Gong through a tough time... 17 Years, 6 Months ago  
Rich,

Our prayers are with you. Good to hear that things appear to be improving.
 
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I am haunted by waters.
Norman MacLean
A River Runs Through It
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#7787
El Rey (Visitor)

Re:Gong through a tough time... 17 Years, 6 Months ago  
Rich,

You and your daughter and the rest of your family have my deepest sympathy. Our prayers are with you.

I can appreciate what you're going through. When my wife was diagnosed with breast cancer more than a year ago, the outpouring of support from this board was amazing. There are a lot of people here that you can count on.

Hang in there and don't be afraid to ask for help.

Sincerely,
Harlan
 
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#7795
Carpy (Moderator)
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Gong through a tough time... 17 Years, 6 Months ago  
My thoughts are with you and your family during this difficult time.

Take care

Paul
 
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If stupidity got us into this mess,
why can't it get us out of it? - Will Rodgers
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#7796
TD in ID (User)
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Re:Gong through a tough time... 17 Years, 6 Months ago  
Our prayers are with you all....
 
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I live in the city, but don't fit in,
You know it's a pity the shape I'm in.
Well, I've got no home, and I've got no choice,
Oh Lord have mercy on a country boy!

-- Don Williams

http://nogoodguitarpicker.com
http://meetmason.com
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#7797
John S (User)
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Re:Gong through a tough time... 17 Years, 6 Months ago  
Rich



Our prayers are with your daughter and your family. I know Deaf F has volunteered at the camp and was very moved at what it meant for the kids.

John S
 
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#7802
CyberFly (User)
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Re:Gong through a tough time... 17 Years, 6 Months ago  
Rich---Thinking about you...If and when you want to take a break, come up and stay here with me.

Frank R. Pisciotta
 
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I love talking fly-fishing. So, if you want some info on fly angling my "home waters" in the Truckee area, do not hesitate to contact me off the board; whether by phone (530-587-7333) or e-mail (cyberfly@cyberfly.com). Please be patient relative to a quick reply; most especially during May-October.

My latest crusade is limiting undo fly fishing guide impact on the Little Truckee River. This small venue is being abused my commericial guiding interests. Consequently the fishery is being abused, IMO, most especially by guides to the detriment of the fishery. Moderation is the key in usage.

During the last two seasons I've diplomatically mentioned to many guides that they should coordinate with others guides so that they minimize impact...it has been to no avail. Some entities are more guilty than others; weather independent or "stabled" (outfitter or fly shop). So I've just started taking this public. Any civil suggestions/comments on limiting guide impact would be appreciated.

For my complete bio go to www.cyberlfy.com; then click-on my photo.



NOW FOR THE SPAM!!

Simply, I'm a fly fishing junkie. In 1984, in order to justify my addiction, I started Thy Rod & Staff in Truckee; the longest existing, fly fishing guide service in the Tahoe area and possibly one of the longest in California. I'm an independent; so the "buck stops with me". I tailor trips to the specific desires and skill levels of the client; no "my way or the highway" guiding.

Simply, experience counts folks! 2009 will be my 26th year exclusively as a professional fly fishing guide in Truckee. As long as I enjoying the interaction with other passionate fly anglers and/or those new to the sport; my service will continue into the future. I also "host" fly fishing club outings.

Encouraged by clients & family I started the Reel School of Fly Fishing in 1996. There are scheduled one & two-day clinics through-out the "general" season; entailing a maximum 3-to-1 attendee-to-instructor ratio. Now, since the season if open year-round; I have a scheduled snow-shoe/fly fishing group-outing during March.

Again in 2010 I will be "hosting" two groups at a private lodge in Chilean Patagonia; located 2+hours from Coyhaique, Chile. The lodge accommodates six (6) fly anglers only. It is located in an isolated river valley (40 minute jet-boat ride down river...no roads). From my past experience in this area, I'm guessing it is like Montana was 50-60 years ago....far-far-away from the "real world". Inquire for specifics, I will be going there every year. I've arranged with the lodge for some incredible pricing for two "hosted" weeks in 2010. Also I can arrange other stays and special pricing...contact me.

Tight Lines-----*

Frank R. Pisciotta

aka....CyberFly!!
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#7804
Bluegrass Bill (User)
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Re:Gong through a tough time... 17 Years, 6 Months ago  
Hey Rich,

Dana and I will definitely keep you all in our thoughts and prayers.

Bluegrass Bill and Dana (Silver Lady)
 
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Bluegrass Bill
Western Lights Band Guitar Player
Sacramento, CA
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#7809
Stonefly (User)
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Re:Gong through a tough time... 17 Years, 6 Months ago  
My brother was diagnosed with the same thing more than 20 years ago. He's doing great. I'm sure they're even better at what they do these days, and UCSF is top notch! It'll be tough for awhile, but we'll all be pulling for her!

I understand first hand how hard it is for the siblings and I think Camp Okizu does great things. Also the hospital will have support groups for all members of the family, it's nice to be with people who you know understand what your going through.
 
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#7810
Betty (User)
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Re:Gong through a tough time... 17 Years, 6 Months ago  
Anyone who has children can guess what you are going through. May the gods smile on you and your child and watch over you.
Betty
 
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